Autism and Me part two by Bonnie Le Hamilton

The other day I was talking to an acquaintance of mine and the subject of Autism came up. I was honest and forthright about being on the spectrum, and she asked me for some symptoms or signs that someone is on the spectrum.

And of course, the not making eye contact issue did come up.

Now, I see this lady almost every Friday because I relieve her as the volunteer receptionist at the Pocatello Visitor’s Center on Fridays. And she always stops to visit with me for a few minutes before she leaves.

In other words, I have chatted with her often, and she said that I do make eye contact. She in fact said I was looking her in the eyes right then.

I wasn’t. I rarely do. I was focusing on her mouth. I’ve done it for as long as I can remember. I even remember once, way back in sixth grade sitting there listening to my mother explain to my new teacher and the principal that I read lips and why I do it.

For most of my life, my family has claimed I read lips to explain away my focusing on lips not eyes. They always had a good explanation. Hearing issues are common in my family and on top of that I spent most of the year between the ages of seven and eight with cotton stuffed in my ears to keep the medicine in them that was there to break up the hard wax buildup in there, which was blocking my hearing.

And I remember my mother mentioning that fact in her explanation of why I focus on the lips.

The problem with that excuse is that I don’t read lips. I can not tell what people are saying if I don’t hear the words, period. Though it only dawned on me in the last few years, after I learned I was on the spectrum, that I can’t read lips. I have never been able to read lips.

I do however focus on the lips. I do try to make eye contact but most often I find it too difficult, and I end up focusing on the mouth, or even the nose, or ears. I sometimes focus on a distant object.

My mother and professionals also explained away my speech delay with our family history of hearing problems and the fact that I’m a twin (Konnie and I did use Twin Speak for a time contributing to our speech delay).

Of course, way back then Autism only affected white boys, or so they thought.

Another obvious sign I had back in my childhood was I tend to wring my hands and rock back and forth when I’m not feeling well. This is often the first sign that I am sick. I still do it. And it is a sign of Autism. But back then they just brushed it off that I wasn’t feeling, well, I wasn’t feeling well. What else could it be? After all, I am not a non-verbal white boy.

There is also my playing with my hair when I was reading or studying. That is another stimming motion and one my stepmother complained about a lot. Though she also praised my attention to detail. (Both are signs of Autism.)

Another issue I still have is that I don’t get jokes, and I don’t usually get them because I take everything so literally. My father always made fun of this little trait of mine. I was often the butt of his jokes and pranks because of it.

The point is, when I was growing up, all the signs were there, but not once did even the professionals consider I might be on the spectrum because I do not fit in the perfect little square, they’d build to define who were Autistic.

 Luckily, my grandnieces won’t have that problem, now that the medical professionals know better. And I am not saying any of them are on the spectrum, I’m just saying, if they exhibit any of the signs professionals today would recognize it, eventually.

Now all I have to do is figure out some way to put such a character in one of my novels. Clearly, I do know what it’s like, and we’re supposed to write what we know. Just have to consider it a little longer.

On another note, an online writing group I’m in is having a first chapter contest, the deadline is October 1^st, and I submitted my chapter last night. Wish me luck!

If they hadn’t limited each contestant to one entry, I might have entered the first chapter of my sci-fi too (even though that novel isn’t complete, then again, the rules said nothing about it being a complete novel.)

Anyway, happy writing everyone!